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Tips from patients
Your treatment involves taking care of yourself and your brace, as well as benefiting from your doctor's advice. Your orthotist will help keep you comfortable.
Continue to engage in regular physical activity and remain attentive.
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You can wear your Braceworks Pectus Brace anywhere, (except in the shower) because it's flexible and unobtrusive.
Participants wearing instrumented versions of the brace have to take special care of the sensor pad and connections.
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Linda C., Parent
Auckland, New Zealand
July 2007
We are back in NZ now after a good flight... I just want to thank everyone there for your help with Alex. The service was fantastic and we appreciate all that you did.
Alex is managing fine with the brace. Compliance will not be a problem as I think we all, including him, forgets it is on.
He proudly shows it to friends and family. The best news is, of course, the change in the shape of his chest wall. I notice very little difference between the two sides when the brace is off. He is sleeping well with the foam eggshell mattress.
September 2007
I thought Marc and the team at Braceworks might like a progress report on Alex.
He is still wearing the pectus brace on a continual basis with no problems whatsoever.
Compliance has not been an issue. The brace did get a little tight onboth sides about 10 days ago and we swapped the pressure pad with the extra one, alleviating the tightness. I mailed the old pad back to you, as we discussed, for you to add to it. That way we will be ready for the next growth spurt.
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Alex is hoping that he will completely grow out of the brace so that he can have another trip to visit you! I enclosed a note with the pad. The measurement of the one he is now wearing is 2cm, including the plastic outer bit. I did take him to the paediatric surgeon here and he was most impressed by Alex's progress and by the brace. He is seeing Dr. Sigalet at a conference this month.
October 2007
Alex is now just wearing the brace at night. It took approximately three months to get to this stage. It is amazing the difference in his chest wall. It is as flat as the other side. As you can imagine, he is very pleased and now thinks nothing of taking his shirt off. Thanks again!
Dr. Ioana Bratu, Thoracic Surgeon
London Health Sciences Centre
London ON Canada
Thanks for the update and I am so happy to hear that the brace is working so well and so quickly! I was truly amazed when I saw Ryan last time; it is like Ryan has no pectus carinatum anymore!
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Wear the pectus brace over top of a good quality, soft cotton T-shirt. ( Under Armour is popular).
Be Patient
Treatment takes time
Once you're wearing your custom fitted brace, give it time.
Watch for improvements and, above all, don't tighten your brace too much. Pressurizing your brace beyond what feels comfortable can irritate your skin and slow down treatment progress.
Get the most from your brace
Ask your orthotist or physician about adjusting your brace for different conditions.
Questions?
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